Anatomy Of A Good
Death
by John Lee
NOTE: To
protect the privacy of the individuals involved, their names have been changed.
Thomas was a 65-year-old retiree who battled
lung cancer for over a year. He received the usual medical treatment of radiation and
chemotherapy, but the cancer had metastasized and spread to other organs in his body. He
lost more than 60 pounds, had no appetite, and could barely breathe without the aid of an
oxygen tank. He decided to end his suffering. He wanted to die.
His hospice nurse, Anna, suggested he have
his wife, Elizabeth, contact the office of Compassion in Dying, a small, nonprofit,
charitable organization in Seattle. Compassion in Dying was formed in 1993 by a group of
dedicated men and women actively involved in the promotion of information, counseling, and
emotional support to terminally-ill patients and their families. Compassions basic
premise is that terminally-ill patients who seek to end their suffering by a hastened
death should not die alone. At the time of Elizabeths call, I had been a volunteer
with Compassion for two years.
At Elizabeths request, we mailed an
information kit with a detailed outline of Compassions services and a copy of our
guidelines and safeguards. Included was an explanation of what was required to accumulate
the necessary drugs and an outline of the protocol Compassion suggests for a hastened
death. The following statement accompanied the material:
This means of hastening death should be
considered only by adult persons who are terminally ill and mentally competent. Persons
considering ending their lives for emotional or other reasons are urged to seek help from
a crisis clinic, counseling center, mental health professional, clergy, or other sources
of crisis assistance.
At the same time, a request form that
detailed the information about Thomass condition was completed by Compassions
office staff and forwarded to the Case Management Coordinator for further review. I was
asked to follow up with a telephone call to make certain they had received the material
and answer any questions they might have. I spoke with Elizabeth, who told me they had
reviewed the material and asked if I would come for a personal visit. Since one of the
requirements outlined in Compassions guidelines is a verification of the primary
physicians diagnosis, I explained that I would be accompanied by a member of our
medical staff who would examine Thomas.
Thomas and his wife lived in a small,
attractive home on Whidbey Island, about an hour and a half northwest of Seattle, a trip
that included a ferry ride. When we arrived, we were greeted by Elizabeth who introduced
us to Anna, the hospice nurse. Thomas was in a wheelchair, his face partially covered with
the mask of an oxygen tank. He was a tall, slender man, and his appearance was drawn and
pale. He explained to us that he was at the stage of his illness where it was
progressively difficult to breathe, he had no appetite, and felt weaker each day. Despite
his obvious discomfort, he exhibited a sharp mind and a keen sense of humor.
He said that he read and understood the
requirements outlined in Compassions guidelines and safeguards. He assured us that
he met all of them, that his personal physician had already prescribed half the necessary
medication, and that he would be able to obtain the balance within a week. When I asked
him when he anticipated a hastened death, he said sometime within the next two months.
While our physician examined Thomas, I asked
Elizabeth how she felt about Thomass plans. She made it clear that he had her total
support and, while it was terrible to think of his loss, it was worse to watch him waste
away to an inevitable death. "We are keenly aware of what the final stages of lung
cancer can be like, and he has made up his mind to choose when the end will come. I will
not stand by and watch him suffer."
Anna confirmed Thomass commitment to
continue with his plans, and, when our physician completed his exam, he carefully reviewed
with her the procedures outlined in Compassions guidelines and safeguards, as well
as the administration of the required medications. When we said goodbye to Thomas, his
farewell comment was that he wished he could buy the doctor and me a drink.
I came away from that first visit genuinely
touched by Thomas as a man who cared for and loved his family. He made it clear that his
greatest concern was for the welfare of his wife and daughter. He did not want them to
stand by helplessly and watch him go through a slow, painful death. I was moved by his
honesty, his sincerity, and his ability to maintain a sense of humor in the midst of his
obvious pain. We discovered that it was the U.S. Navy that brought us both to the
Northwest, and that we had similar interests in music. There was something genuine and
authentic about him. I liked him and left with the sense that it would be a privilege to
assist him in this most important decision.
Two days later our physician submitted the
following report to the Compassion office:
I visited with Thomas on September 24, 1995.
The patient has medical records documenting the diagnosis of lung cancer, first diagnosed
in July 1994. He has lost 62 pounds in the last 15 months, has documented metastases to
skull, right shoulder, and right leg (femur). He has had chemotherapy and radiation
therapy. He now requires continuous narcotics for pain relief, and is eating very little.
He has decided against any further chemotherapy. He is very mentally competent and not
depressed. He is fully aware of the consequences of his decisions. In my opinion, he is
terminal with no more than 1-2 months to live.
I kept close contact with Thomas and
Elizabeth in the days that followed. I became very fond of them both, and I began to look
forward to our frequent telephone visits. I also kept in touch with Anna, his hospice
nurse, and it was she who informed me that Thomas had requested we both be present when
the time came to hasten his death.
On Monday, October 9, I received an urgent
telephone call from Anna telling me that Thomas had experienced a particularly bad
weekend. She asked that I call his wife as soon as possible. When I reached Elizabeth, she
told me that Thomas had endured a great deal of pain over the previous two days and had
made up his mind that his condition had become unbearable. When I spoke to him, he could
barely talk and asked if Anna and I could be with him on Thursday. By this time his
physician, who was aware of Thomass plans, had prescribed a sufficient supply of the
necessary drugs to effect a hastened death.
I immediately called our Case Management
Coordinator. She told me that since neither Anna nor I had ever assisted a dying patient,
it would be necessary to have an experienced case manager in attendance. Because of the
short notice, I had some difficulty but was finally able to make arrangements for Sarah to
assist me. I called Elizabeth and told her we would arrive to assist Thomas at 10:30
Thursday morning.
When Sarah and I arrived, Thomas was asleep.
Anna had already prepared the medications and arranged everything on a tray. She even
included flowers. Elizabeth was making coffee and, when I asked how she was, she replied,
"Dont ask, it only makes me cry." I introduced Sarah, and we decided to
let Thomas sleep. Elizabeth said her daughter Mimi called and wanted to be in attendance.
Sarah and Anna reviewed the instructions outlined in the Compassion protocol. There was an
air of tension and apprehension with what we were about to do.
Mimi arrived as we made final preparations. I
reminded them all that what we were about to do was an act of compassion done out of
concern for Thomas and that nothing would be done without his expressed wish. By the time
we were ready to wake Thomas, I felt we all shared a strong sense of commitment.
Thomas was confined to a small bedroom
adjacent to the master bedroom. When we awakened him and introduced Sarah, he thanked us
for our assistance. I reminded him again that he only need tell us if he had changed his
decision. He was clear and adamant in his determination to proceed.
I was stunned by his appearance. In the short
time since my last visit, he evidenced severe physical deterioration. He fought for every
breath and could barely summon the energy to sit up. I could only compare his appearance
to published pictures of Auschwitz prisoners. Despite his obvious weakened physical
condition, he still maintained a remarkable mental presence and his wonderful sense of
humor. He grinned and said, "Today is the day. Just tell me what to do."
I noted by the clock at his bedside that it
was 11:20. The protocol called first for Thomas to eat a small portion of food to be
certain he had something on his stomach. Mimi had prepared some toast, and as Thomas
slowly ate it, he turned to his wife with a sudden urgency and said that he had forgotten
to give his favorite pair of sunglasses to one of his friends. Elizabeth replied that she
would see to his request, with the added comment, "This man is a few heartbeats from
meeting his Maker and hes worried about a pair of damned sunglasses." She then
told us that Thomas had invited some of his Navy buddies to be with him a few days before.
He had given then all his clothes and said his final goodbyes.
At 11:30 Sarah again reminded Thomas of his
right to stop the procedure at any time. For the next few minutes there was much to be
done in the kitchen, and I had the opportunity to spend a few moments alone with Thomas. I
asked him what he imagined he would find "on the other side." "When I was
in the navy, we always said the two best duty stations were the one you just left and the
one you were going to. I just figure Im being assigned to a new ship."
At 11:45 Anna gave Thomas some additional
medications. Compassions guidelines are very precise about the fact that patients
must be able to ingest all of the medications by themselves. While Thomas took the pills
with the aid of a glass of orange juice substitute, he remarked that the astronauts took
Tang to the moon, so he could take it on his way to heaven. While he seemed to be the most
relaxed person in the room, the rest of us experienced our individual anxieties.
Anna had prepared the last of the prescribed
medications in a cereal bowl. At 11:55 Sarah mixed these ingredients with a small amount
of applesauce. She explained that it was important for Thomas to ingest the mixture
quickly so that he would not fall asleep before he consumed the entire amount.
Elizabeth had prepared a quantity of vodka
suggested in the protocol to help speed up the effect of the drugs. When Anna had made
certain Thomas was seated in a comfortable, upright position, Sarah gave him the mixture
with a spoon and instructed him to eat it very quickly. She cautioned him that it would be
very bitter and not to linger over the taste. Thomas ate quickly and in obvious distaste.
When he finished, he was given the vodka cocktail to help wash down the mixture. It was
twelve noon.
We were all pleased the procedure had gone so
well. Thomas again expressed his appreciation for our counsel and assistance. We were
somewhat shocked when he said he wanted to smoke a final cigarette. Mimi reached in the
table drawer and produced a pack of cigarettes and a lighter. I asked for the lighter, and
told him I would consider it a privilege to be allowed to light it for him. With the
cigarette in one hand and his vodka cocktail in the other, he leaned back with a gentle
smile on his face and quietly prepared to take his final leap into eternity.
Sarah sat beside the bed and carefully
monitored Thomass condition. When he said he was sleepy, she withdrew the cigarette
and cocktail and helped him lie back in a comfortable position. He closed his eyes and
whispered, "I want to rest." Elizabeth and Mimi quietly went to the kitchen with
Anna to wait. Sarah continued her vigil while I waited at the foot of the bed.
His head was laid back on the pillow, and he
looked exactly like someone who was going into a peaceful sleep. After a few minutes,
Sarah asked me to get the others from the kitchen. When we returned, Anna felt
Thomass pulse and checked his heartbeat with her stethoscope. Elizabeth asked,
"Is he gone?" Anna replied, "Yes." It was 12:20.
Elizabeth and Mimi embraced. Anna busied
herself by easing Thomass now still body into a prone position. Sarah and I simply
stood in quiet wonder. I could not help but feel amazement at what had occurred. This was
a death, yes, but even more, it was deliverance, liberation, a freeing from physical
suffering and pain. It was a miracle, and somehow in those quiet moments, I had never felt
closer to the presence of God.
We instinctively drew together in a circle,
our arms around each other, and surrendered to the emotions of the moment. There were
tears, but they were not tears of anguish or grief. There was no wringing of hands, but
rather an extraordinary sense of accomplishment, a palpable sense of joy. Thomas had died
a beautiful death, an easy death, a good death.
What happened next was as remarkable as what
had just occurred. We adjourned to the kitchen and, in the wink of an eye, Elizabeth,
Mimi, and Anna began to create a memorial celebration. They instructed Sarah and me to
take seats at the table. Anna prepared an appetizer tray of hummus, pita bread, and
wonderful black olives. Mimi made fresh coffee and iced tea. Elizabeth served a dessert
tray of fruit and cookies.
We were all famished and, with a combination
of tears and laughter, we shared our thoughts and emotions. At one memorable point in this
celebration of life and death, Elizabeth went to the living room and put on Thomass
favorite record: Louis Primas rendition of "O Marie." As she returned to
the table, she paused and, in the direction of the small bedroom, announced.
"Thats for you, Thomas."
When Sarah and I arrived at the ferry, we
both felt the need to be with our own thoughts. It was a beautiful autumn afternoon, and
as I walked the upper deck and reflected on the days experience, I felt a deep sense
of gratitude for what Thomas had taught us through his death. He faced his lifes end
with a grace, a dignity, and a courage I did not know was possible. I felt certain that in
his death he would find the kind of eternal reward found in the words of
Chekhov:
"When we come to die, we will die
submissively and beyond the grave we will testify that we have suffered, that we have wept
and have known bitterness. God will pity us, you and I. God will take pity on us and we
will live a life of radiant beauty. We will look back on this life of our unhappiness with
tenderness, we will smile and in that new life we shall rest--I know it. I have faith, I
have passionate faith, we shall rest. We shall rest to the songs of angels."
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